Sjogren Syndrome Support Group Plan

Sjogren Syndrome Support Group PlanPunit DaveTABLE OF CONTENT (JUMP TO)INTRODUCTIONOverviewChallengesPROPOSED PLANLeverage PointsEffectivenessSuccess MetricsFuture readyingScheduleStaffBud nail findingREFERENCESINTRODUCTIONOVERVIEWIn partnership with University of Houston Medicine and Technology department and American Association of Rheumatologist we are the only discipline nonprofit clog group to provide education, awareness, regular checkup, and investigate for Sjogren syndrome. In autoimmune unhealthiness the immune system attack and destroys the monsieur producing glans throughout the persons body. Sjogren is the second most common autoimmune disease in United States which effecting estimated 5 million people in United State. The Sjogren is three times more common than related disease like, Lupus, Multiple sclerosis and it is more common among women indeed breast cancer. The nine out of the ten Sjogren patients are women. The Sjogren syndrome patients suffer from trueness of symptoms that range from dry bosom and dry mouth to chronic fatigue and muscling joint pain. This disease also effect internal organs and internal middle systems. In anticipation of people become familiar with disease and its symptoms it allow remain difficult to diagnose bothone who suffering from Sjogren syndrome. Thats why our community continues to urge on for patients who arent able to explain their diseases or confused by the many facets of the diseases. Our community dedicated to raising awareness, so some day the patient diagnoses with Sjogren then he or she will have heard of it and will know where to turn for dungeon and guidance.CHALLENGESWith Sjogren the correct diagnosed is often difficult to obtain. It will take near 4.7 years to correctly diagnose the Sjogren, because the Sjogrens symptoms often mimic other condition and diseases. Sjogren is often overlooked or misdiagnosed. Patients will discuss dry eye with optometrist, dry mouth with their dentist or joi nt pain with their primary doctors. Each symptom alone wouldnt suggest an autoimmune disease and couple symptoms together will lead physicians to suspect Sjogren. This is why increasing awareness among the general public is very important. We strongly recommend Sjogrens patients get treatment form one doctor. Changing the doctors wont cure Sjogren tho it often creates confusions among the doctors and patients. Getting treatment from multiple doctors also lead to incorrectly medications, diagnostic and it will hurt patients financially and medically. With a help from university of Houston medicine department and AAR we provide many medical checkup, medical road map and nutrition plans to our members so, they unceasingly get right advice and treatments.PROPOSED PLANLEVERAGE POINTSSjogren Syndrome victuals Group is the leading advocate for Sjogrens patients. We have dynamic volunteers, medical, scientific advisory board and researchers who take a crap in Sjogrens and recognized n ationwide. Together with this volunteers and health care professionals, our group has been able to implement programs such as the first ever clinical practice guidelines for Sjogrens. This guideline gives Sjogrens physicians a road map for how to treat, monitor and manage sjogren in their patients. This is just one example of our support group on how we achieving our mission and changing the life of sjogren patients.EFFECTIVENESSSjogren Syndrome Support Group stands on our founding principal of putting the patients first. From our 10 plus patients run support groups to our hundreds technical volunteers we serve our members with an dexterity to connect with others who have Sjogrens. Our programs of educations al managements involve our volunteers to help review our educational materials, conference topics and Sjogrens content. Our research grants from our sponsors are also awarded based on innovations. It we will help us to change the field of Sjogrens the fastest to estimate the g reatest gain for sjogren patients. I believe our group is effective because of patient enunciate is never forgotten.SUCCESS METRICSWhat are the metrics of success for our group?The Sjogren Syndrome Support Group measures the impact and success by many variables. For example our support group manages over 50 support groups in Houston area. Prints many newsletters and distribute hundreds of brochures each year. The American association of rheumatologist distributes important guidelines to each patient and provides the advice to join our support group. It will give patients an opportunity to share their thoughts with others and help others to overcome from this situation. Most importantly our support group always uses metrics to gage the success of every campaign, every program and every project. We set goals, we set objectives and then we evaluate them against the simple questions of how do these impacts on life of Sjogrens patients.FUTURE PLANNING additional support from CCHP would help us expand our education and awareness programs. This support would enable us to attended more professional conferences to educate healthcare professionals. redundant reassures would also allowed our support group to distribute materials to more specialist which would ultimately assist us to reaching patients who may be suffering from particular symptoms, but didnt realize the cause could be a systemic diseases such as Sjogren. Finally, for support the patient and cure of Sjogren, more funding needed that way our support group can produce national awareness campaign and reach the 3million penitents there are not yet diagnosed.SCHEDULE (May 10 2014 appalling 30 2014)STAFFWe excited about future of Sjogren and we really around pace for great discoveries, but in order to make Sjogren a fellowship name we need everyones support and help for more awareness, raise funds and volunteers. We have hundreds of volunteers and volunteers board of directors to help and support our group. Along with that we have healthcare professionals from Medical and Scientific Advisory Board (MSAB) and American Association of Rheumatologist (AAR) to stands for the wide range of specialties involved in Sjogrens diagnose treatment and research.BUDGETCONCLUSIONIt is a proud moment for us that, we are premier organization in Sjogren research and support group funding. However more funding is needed as more talented researchers are taking interest in Sjogren. Our support groups goal is to finding an additional funding to support these groundbreaking projects. Without increase support from research we cannot fund this projects and thus thing must be turn away. Our hope is one day all Sjogrens research and support group adequately funded so patients can have the answers for their disease. Being a Sjogrens patient is challenging, but neither having a therapy to treat your disease nor understating what causing it is heartbreaking.REFERENCESAutoimmune Disease Coordinating Committee. (n.d. ).. Retrieved April 25, 2014, from http//autoimmune.pathology.jhmi.edu/adrp.pdfAmerican Collage of Rheumatology. (n.d.).. Retrieved April 30, 2014, from http//www.rheumatology.org/Grant Writing. (n.d.).Sample Budget and Narrative -. Retrieved May 1, 2014, from http//www.netplaces.com/grant-writing/developing-a-budget-and-budget-narrative/sample-budget-and-narrative.htmSjgrens Syndrome Foundation Scientific Initiatives. (n.d.).Sjgrens Syndrome Foundation Scientific Initiatives. Retrieved April 28, 2014, from http//www.Sjogrens.org/ habitation/research-programs/scientific-initiativesSjogrens syndrome. (n.d.).Definition. Retrieved May 1, 2014, from http//www.mayoclinic.org/diseases-conditions/Sjogrens-syndrome/basics/definition/con-20020275When an Autoimmune Disorder Forces You to Alter Your Life Plans Autoimmune Disorders Center Everyday Health. (n.d.).EverydayHealth.com. Retrieved April 28, 2014, from http//www.everydayhealth.com/autoimmune-disorders/when-an-autoimmune-disorder-a lters-your-life-plans.aspx